Celine Dion’s battle against her rare disease

A year ago, Canadian singer Celine Dion, 55, mustered the courage to tell the world that she suffered from a rare and serious neurological disease, known as stiff person syndrome, which causes, among other symptoms, severe pain and muscle spasms that prevented him from performing. With all the sadness in his heart, he had to cancel his tour; Since then, he has made few public appearances.

This week, her sister Claudette (75 years old) revealed this in an interview with the magazine 7 days The artist’s health is deteriorating. “Even though he works hard, he can no longer control his muscles,” he laments. “What breaks my heart is that she was always disciplined; she always worked hard. Our mother always told him: ‘You’ll do well, you’ll do well.’

The artist is currently recovering in Denver and is carefully following her doctors’ care plan.

Claudette knows the future is uncertain but she wanted to offer a ray of hope to her translator’s followers My heart will go on He said his intention is to return to the stage although he “will have to wait an indefinite period of time before he can resume his performances.” His family does not lose hope, even though “there are those who have already lost it because it is an unknown disease.” The singer is currently recovering in Denver and carefully following her doctors’ care plan, with the firm intention of returning to the stage.

Stiff person syndrome affects the nervous system, and because it is progressive and incurable, it has a serious impact on mobility. It is characterized by progressive muscle stiffness, especially in the trunk muscles, and marked sensitivity to stimuli such as noise, touch, and emotional stress, which can cause episodes of painful muscle spasms. Those who suffer from it can become human statues, with difficulties walking or speaking. Although the exact cause is unknown, it is thought to be an autoimmune disorder, in which the body’s immune system mistakenly attacks its own cells and tissues.

Despite the rumors circulating on social media, Claudette Dion denied that her sister was in a wheelchair or that she was suffering from cancer, according to what was published by the British newspaper. daily Mail . He confirms that Celine is still strong morally and mentally, and denies that the disease has diminished her love of life.

The illness forced the artist to cancel her world tour courage a year ago and was scheduled to run until 2024 and also pause his theatrical career indefinitely. As Claudette detailed in statements she reported New York Post The vocal cords and heart are vulnerable to this disease.

Dion’s family has received countless messages of support through her foundation, Fondation Maman Dion. But hopes for improvement are slim, despite the efforts of “the best researchers in this field,” as confirmed by the singer’s relatives.

In one of his few public appearances, last November he attended a Montreal Canadiens hockey game. She appeared there in good spirits, accompanied by her three loved ones, and the children she had with the long-lost Rene Angélil: Rene-Charles, 22, and twins Nelson and Eddy, 13. Love again where Celine plays herself and sings some songs on the soundtrack.

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